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17 year wait because doctors don't ask 'right questions'
People suffering from obsessive compulsive disorder are waiting up to 17 years to be diagnosed, because doctors are failing to ask them the "right questions", experts have said.
Psychiatrists estimate that between one and two per cent of the population suffers from the disorder, which is characterised by irrational thoughts and ritualistic behaviour.
But OCD patients are waiting years after first suffering symptoms to being diagnosed and receiving effective treatment, according to experts who have compiled new guidance for the NHS in England and Wales.
Dr Tim Kendall, joint director of the National Collaborating Centre for Mental Health, said patients with OCD were not getting the right treatment.
"Young people are being disowned by their families. People are suffering feelings of shame and embarrassment," he said.
We are not doing a fantastic job for these people there is no doubt. Often professionals just don't ask the right questions."
Children as young as six or seven can also be diagnosed be OCD and it is thought to affect one per cent of under-18s.
Dr Isobel Heyman, a consultant psychiatrist at Maudsley and Great Ormond Street Hospitals, said: "OCD really can destroy young lives.
"They can spend six or seven hours a day washing and they may not be able to go to school because of their rituals."
Cosmetic surgeons warned
There were also calls for greater awareness of body dysmorphic disorder (BDD), with cosmetic surgeons urged to be wary of patients seeking operations for physical defects that are only in their mind.
An estimated 0.5 to 0.8 per cent of the population are thought to be affected by BDD, where people become obsessed with their appearance and perceived flaws they want corrected.
Today the National Institute for Health and Clinical Excellence (NICE) published guidance on the treatment of both OCD and BDD, with calls for more counsellors to offer the psychological treatments.
One sufferer who helped develop the guidelines, Gillian Knight, said she became obsessed with the thought that she would harm someone or cause an accident.
'I spent an hour checking the bathroom was safe'
"I had to keep checking that things were safe after I had been near them.
"I once spent an hour getting out of the bathroom because I was trying to make sure the mat was flat and the more I tried to make it flat the more worried I got," she said.
Ms Knight started experiencing symptoms of OCD at the age of 13, but was not diagnosed until she was 26. She said that the talking treatment called cognitive behavioural therapy (CBT) helped her deal with the problem.
The Nice guidance recommended that CBT should be offered as the first line therapy for children, young people and adults with mild to moderate OCD and BDD.
This treatment could include exposure and response prevention (ERP), where the patient is exposed to the thing they are afraid of and taught to cope.
The guidance said that anti-depressant drugs - selective serotonin re-uptake inhibitors (SSRIs) - should be offered as an alternative to CBT in patients with more severe OCD or those who do not respond to psychological treatments.
But Dr Kendall admitted that more staff were needed to tackle the problem.
"We know that there are currently not enough people to deliver psychological therapies.
"Now is the time to increase our capacity and provide real help for those people that need it," he said.
Here's what readers have had to say so far.
I suffer from ocd and have found that even with therapy they dont really understand enough to treat it. I talk things over but in no way has it made things better.
- Sarah, peterborough
I would like to say that I had to self diagnose and tell my GP what condition I thought I had. I then got the treatment and medication that I needed and my quality of life has improved, so much so that I am now a manager and lecturer and my life is moving forward instead of being a constant battle with OCD.
I have spent almost 30 years, from the age of 16, being put on various, ineffective drugs for my condition, including Lithium, and have been sent to various consultant psychiatrists, counsellors and behavioural therapists..... all to no avail.
Untreated OCD has resulted, over the years, in my having psychotic episodes, constant suicidal thoughts, extreme anxiety and serious clinical depression.
Had I known the information that I do now and had I been put on the right medication I would not have had to suffer, as I did for so long.
The drug I am taking is excellent for me and my life has changed a great deal. I have no side effects and simply take a maintenance dose.
- Nicola, Wincanton, Somerset, UK
I have had ocd most of my life, since I was a child and have yet to be diagnosed. Doctors seem to have no idea what it is, this is good news that there will be guidelines set and I hope one day I will get the proper help I so desperately need.
